Here is some information about my study: I am conducting a study, which has been approved through Wayne State University’s Institutional Review Board, to examine the quality of life among parents of adult children with Autism Spectrum Disorder (ASD). In order to be eligible for participation, parents must be at least 50 years old and have an adult child diagnosed with ASD (18 years or older). My study includes a short online survey (typically taking about 15 minutes) and is anonymous. My study can be accessed through the following link: bitly.com/1wkSy0p
Attached you will find a flyer with more information regarding my study.
Should individuals have questions about my study, I can be reached via email (AL9887@wayne.edu) or phone (248-961-0704) I greatly appreciate any help you can provide in passing along the information below to any contacts (parents or other professionals) that might be interested. Please feel free to forward this along to any individuals that may be interested or those that might be able to pass information along to others. Needless to say, despite recruitment efforts throughout many parts of the country, it's been very difficult to connect with parents of adult children with ASD-- so whatever you can do is so appreciated!! Thanks so much for any help that you can provide. Please let me know if you'd like me to send paper copies of my survey for others to complete.
Just finished your excellent survey. Only one question I couldn't interpret: "I will never by able to repay my child" was the general idea. Not sure if this meant, "Caring for my child is worth more than any cost" - to which I'd say Yes.
On the other hand, we went from the lower rungs of upper-middle class to the upper rungs of poverty, having to move across the country to get ABA. (This was 15 years ago.)
Post by Andrea Stefani on Apr 28, 2015 9:32:15 GMT -5
Hi Chrissy ,
Great,that you do a study about parents life's quality (or sanity...!?) of adults with ASD ! I have been thinking how important that would be,because my suspicion is,that many are like me,ending up being single parents..and having not only the big task of total ,lifelong support with usually a lot of isolation due to loss of friends (all get tired to feel sorry or are worried to have to help out,listen etc)...but that many are like me also experiencing additional strains and pains from their other children,possibly!?>
I have wondered,how to form more of a support network between us single-parents-of-ASD-adult-kids....but am at a loss and would really like to get a copy of your survey and master thesis,once you're happily done !?..if possible,thanks,Andrea Stefani